I had to make the decision to remove someone from a ventilator. In my selfishness, I would have left them on forever...fortunately for all involved I realized my own selfishness after about 5 seconds of thought.
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clever trousers |
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Thanks for the info.
I had to make the decision to remove someone from a ventilator. In my selfishness, I would have left them on forever...fortunately for all involved I realized my own selfishness after about 5 seconds of thought. |
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pinkdolphin |
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The Smoking Nun wrote: There was a story like that here in Texas. The baby was on life support and the mother wouldn't take it off because it was a US citizen and she was not. Now that baby I felt sorry for. |
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The Smoking Nun |
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clever trousers wrote:Sorry you had to go through that, you must have loved them a lot. I would go off the deep end if I had to make a decision like that. |
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clever trousers |
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They were in brain death, that's why I asked. Of course I was all worried that maybe I shouldn't, but after brain death, what sort of ... well, life...
is that? I.e. it wasn't that I had to decide if they had the slightest possibility to get better. So I don't know that it was a "decision" if
you see what I mean.
Thanks for your sweet words. :) |
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ESugar |
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ct my heart breaks for anyone who has to make a choice like that.
This Baby RB kid has all his mental capacities though, including emotion and sensation. He can feel what his body is going through every day. But he's just a baby, how do you tell a baby that we're going to let him die because his body doesn't work right. But then how do you let him live to an age where he begins to hate his own existence? There's just no way that ends well. |
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clever trousers |
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I agree ESugar- that's the thing with the little Stansels as well, I believe, they are able to feel sensation, not in brain death. It must be horrible for
them, and difficult to consider... I mean I'm sure the parents WANT to believe there is SOMETHING that will happen, that they'll get better somehow,
etc. Heartbreaking.
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ESugar |
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And these poor children will never know anything different in their entire lives, regardless how short they are. Pain will become normal to them. I think of my
cousin who was hypoglycemic and was only diagnosed then he was about 8 or 9. All his life he just went around feeling ill, but he never complained. He thought
everyone could "feel their tummy" like he did. Pain was just a sensation. Multiply that by 10 000 and is this what these "parents" want
their babies to grow up knowing?
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Tender Branson |
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raa66 wrote:Hello mudder, hello fadder. . . . . |
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The Smoking Nun |
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clever trousers wrote:Yeah, I know what you mean. But you were still brave to do what was right for that person. |
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superguppie |
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I had to make the decision to remove someone from a ventilator. In my selfishness, I would have left them on forever...fortunately for all involved I realized my own selfishness after about 5 seconds of thoughtI'm sorry to hear this, CT. I cannot imagine a more difficult decision. You were brave and very, very unselfish. |
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BackBayBerries |
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Yeah, that blows, CT. I'm sorry to hear it. Unfortunately, I've been there too, although my situation wasn't removing life support, it was
withholding treatment. The treatment would have only prolonged life for a few months, but to have a few more months with that particular loved one would have
been, well there isn't a word, really, to describe how wonderful more time would have been.
But not at the cost of the treatment, which would have resulted in such sickness and pain for this person. So it was an obvious decision, but it cost me alot to make. No regrets though. It was the only thing to do. |
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clever trousers |
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I'm sorry B3, that sounds so hard too. Thanks gup and TSN also.
I guess I brought the story up because I know that even when there is no real other choice, it would be so difficult to remove life support or deny care. Because you have that tiny part of you thinking that maybe the heavens would open up and some crazy miracle would happen or whatnot. These baby stories just break my heart because like ESugar was saying, to them, the pain is "normal". |
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BackBayBerries |
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I feel terrible for those babies too, poor things. Hopefully they'll get the best case scenario.....developmentally delayed, but hitting targets on their
own schedule and relatively normal as adults.
Maybe it's b/c I'm not terribly religious, but I don't really feel that way about hoping against hope for a miracle. Honestly, I didn't struggle much with the actual decision, b/c it was so clear that treatment would only bring more suffering, not any kind of quality of life. That's not to say I made the decision easily though. It fucking sucked and I wouldn't wish that responsibility on my worst enemy. As much as the Stansels are lunatics, I kind of envy them, and all people who truly have faith. How wonderful to honestly believe you'll see your loved ones again. I wish I could believe that. It would make death so much easier to accept, wouldn't it? |
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ESugar |
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It does make our own death easier to face, and the death of "believing" loved ones, but the quality of our lives is no different. For a religious
person to claim "faith" in making incomprehensible decisions like this one is irresponsible at best. There is no defense of a "faith" that
compels you to put any life through suffering.
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kxaalum |
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Tonight we were able to hold our little ones skin to skin or also known as kangaroo holding. I held Rachel and Thomas held Haley. We used a Zak's Sack to help hold them secure. A zak sack is a wrap that zips up. Rachel tolerated it well and just slept the whole time. Haley wasn't sure what to think of it, but we will continue to hold her skin to skin to get her used to it. Its such a wonderful feeling to be able to hold my babies so close. This is another exciting step forward. The doctor even said that they are going to start weaning the girls cpap settings in preparation to transition to nasal cannula. It will be so exciting to get them on the nasal cannula. They continue to make wonderful progress. We hope they continue in this direction. We love our girls so very much and are so proud of them. |
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kxaalum |
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shirley said... |
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Aunt Pappy |
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"Haley wasn't sure what to think of it."
Is this the one who always gets angry? |
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harshaw66 |
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I would like to see the sextuplets share their awkward facebook moments with us.
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Aunt Pappy |
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That would be rather difficult considering they aren't sextuplets anymore.
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harshaw66 |
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Difficult, yes, but no less interesting.
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