kxaalum wrote:
Rachel was moved from her cpap to a high flow nasal cannula today. Dr. Hernandez one of our neonatologists decided to make the move because Rachel has been fighting the cpap a lot. The doctor thinks that she has been fighting it so hard that she has burned way too many calories thus her growth the past week has been hardly anything. It is so important for Rachel to gain weight, it is what will help her to over come some of the problems she has like chronic lung disease. She was on the vent for so long that she has some scaring of the lungs, but the good thing about that lung in an infant continually grow new lung tissue up until a certain age. Rachel has done very well thus far on the high flow cannula. Her O2 saturations have been 100% all day on 50% of Oxygen concentration. She has had a pretty good day over all. We hope she never has to go back on the cpap.This is the first we hear of her having chronic lung disease. It also makes me wonder about Haley's brainbleed. I know Rachels' had cleared up but they did a follow up scan and nothing was said about the results. They can pick and choose what they share of course, it's their right, just makes me wonder if there are any other problems they choose not to share for the sake of promoting their religious agenda.
For what it's worth, chronic lung disease is a pretty generic diagnosis and a given for babies on the ventilator for extended amounts of time. It's not really something the doctor's sit you down and say one day "your baby has CLD". And she is right that most babies will grow out of since they are growing new lung tissue. Also our hospital does brain MRIs at 36-38 weeks gestation regardless of previous brain bleeds so if TWH is the same they should get some final opinion on damage to the brain...though that may just bring more questions then answers for them.
